Declare your care

To support the CQC #Declare Your Care Initiative, we spoke to adults with a learning disability and/or their carers to gain an understanding of their experience of receiving health and social care services.

The Care Quality Commission (CQC) are running a campaign #DeclareYourCare to encourage people to speak up about the care they are experiencing good or bad. This feedback is essential to help services learn and improve the quality of care they are offering.

The CQC found

  • 58% of people regretted not raising a concern over care that they or someone they care for had recieved.
  • When they did raise a concern 66% of people said that the concern was dealt with quickly and they were happy with the outcome.
  • 52% said they didn't know how to raise a complaint
  • 33% didn't want to raise a concern as they thought they would be seen as a troublemaker.

The focus of our work was talking to adults with a learning disability and/or their carers to gain an understanding of their experience of receiving health and social care services. We also discussed making a complaint, if necessary. The engagement took place over 2 sessions and involved 21 adults, 20 of whom stated that they had a learning disability. The remaining 1 adult was a carer.

The majority of people surveyed stated that the health and social care services they received were good or okay. Most of the people we spoke to had never made a complaint, and also said that they would not know how to make a complaint. The majority of people that we spoke to did not know about the patient passport and half of the people did not know about the specialist nurse at the hospital for people with a learning disability. Very few of the attendees knew about their right to have an annual health check.

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If you require this information in an alternative format please contact us by telephone 01226 320106 or email healthwatch@barnsleycvs.org.uk

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Declare Your Care

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